We provide comprehensive services to
meet the total needs of people affected by leprosy
by:
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Medicine providing people diagnosed with leprosy with modern
treatment - the Multi-drug therapy (MDT) as quickly as possible in order to
prevent deformity. |
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Hospital
care treating the complications of leprosy such as serious
ulcers or reactions, and providing surgery, intensive
physiotherapy or artificial limbs. TLM works through its own
hospitals, or undertakes to provide leprosy care in the
general hospitals of governments or other Non-governmental
organisations. |
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Prevention of disability
teaching patients and their families how disability can be prevented
through proper self-care. Also providing protective footwear and adapted
tools etc to remove dangers from daily life. |
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Community
awareness helping to break down the fear and stigma associated
with leprosy by teaching the true facts of the disease -
leprosy can be cured; isolation is not
necessary. |
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Rehabilitation helping people to lead as full a life as possible
after leprosy - accepted and socially integrated into their communities;
able to live meaningful lives; and financially and physically
independent. |
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Reconstructive
surgery restoring usefulness to affected limbs and correcting /
improving facial
disfigurement. |
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Vocational
training training
people in professional skills which will enable them to have a
steady job or set up their own small business. |
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Schooling removing the barriers which prevent leprosy affected
children from continuing their education, for example,
illness, poverty and stigma. |
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Training General Health
staff
to fully
involve general health staff in caring for their own people by passing
on medical knowledge, skills and compassionate
approach. |
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Find below two case stories:
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SHEHU ABDULLAHI SARKIN FADA
Shehu was
infected with the leprosy germ when he was a young boy, and suffered for
many years without treatment. By the time he was able to take
anti-leprosy treatment, the germs had already damaged the nerves to his
hands and feet.
After
treatment at Amanawa Hospital, Sokoto; Shehu was declared cured.
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Despite many years of rejection and ridicule by his peers, Shehu
managed to finish his primary and secondary schooling.
He says “I was disadvantaged enough by the leprosy,
without adding lack of education to my problems.”
By the time he came to know the staff of TLM Nigeria, Shehu was already
working as leprosy assistant in Gusau LGA, his hometown.
By this time he was well accepted in the community and was a
good advocate for people affected by leprosy, giving talks and messages
on the State Radio programmes and preparing leaflets in Hausa about
leprosy, its treatment and the people affected by leprosy.
He had however been denied admission to any higher education, including the
school of health technology because of his disease. TLM Nigeria
sponsored his admission to the TB/Leprosy Supervisor’s(TBLS) Course at the
National TB/Leprosy Training centre in Saye, Zaria. Shehu graduated in
the top five of the class overall, and top of the class in the leprosy
section.
Now appointed as the TBLS for Gusau Local Government in Zamfara State, Shehu
also assist with Prevention of Disability and Rehabilitation Activities
across the state.
In December 2003, people affected by leprosy from 16
states in Nigeria elected Shehu as chairman, of a newly established
organisation IDEA Nigeria. (IDEA is an international association for
people affected by leprosy and stands for
Integration,
Dignity
and
Economic
Advancement). |
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EKAETTE OFFIONG
Ekaette Offiong is a 25 year old lady who suffered with leprosy for
years before learning about the hospital at Ekpene Obom. The nerves to
her hands and feet were affected and she now has visible deformity. |
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Her feet are at risk of wounds if she walks too far. She has finished
taking multi-drug therapy (MDT) and is now free of leprosy. However, the
nerve damage is permanent. Ekaette is now studying for her teacher's
certificate to become a qualified primary school teacher. She is having
plenty of teaching practice at the primary school inside Ekpene Obom
hospital compound. |
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IDEA NIGERIA
Launched in December 2003 at a workshop sponsored by TLM Nigeria, IDEA Nigeria is
a member of IDEA International, the association for people affected by
Hansen ’s disease (Leprosy) all over the world.
I - Integration
For so long people affected by HD have been isolated in society, kept in
settlements, denied admission to general health facilities, some denied
access to schools and colleges.
TLM and IDEA want to spread the word that HD is a disease like any other,
that it is curable.
When people have HD they need multi-drug therapy (MDT), but at no point do
they need to be isolated from the community.
People who have had HD in the past can and should live
full and productive lives as legitimate members of society.
D - Dignity
Visible deformity leads to embarrassment. The visible deformities caused
by nerve damage in leprosy are quite distinctive and mark a person out as
different.
Such deformities often lead to people feeling ‘disabled’ – unable to
function in life as before.
TLM and IDEA seek to restore dignity to people who have low self-esteem.
We see potential in people and work with individuals and communities to help
them recognise and achieve their potential in life.
We help people to see that their abilities are greater than their
disabilities.
EA - Economic Advancement
Lack of education and social exclusion leads to lack of employment, and so low
economic status.
Working with communities TLM and Nigeria offer micro-credit services, advocate
for employment of people with disabilities and lobby for re-instatement of people
who were dismissed from work because of HD.
TLM and IDEA want to spread the word that HD is a disease like any other,
that it is curable.
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You can contact IDEA Nigeria:
81 Shiroro Road, c/o TLM Nigeria, P.M.B 179, Minna, Niger State. |
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